#TheLupusGrindNeverStops is a very important movement, not only to me but every Lupie in the world. Lupus is an invisible illness that can cause so much damage, not only to the Lupie but also family and friends. It’s an illness that I wouldn’t wish on my worst enemy. You never know when you will get sick. You never know what symptoms you will have. You never know how severe a flare can be.
For me, I think the worst part of this illness is that you can look “normal” but on the inside you feel like your body is falling apart. It feels like your body is betraying you and there is nothing you can do about it. The fear of catching something as simple as a cold is real. What takes the average person a couple of days to get over, can have a Lupie down for at least two weeks. Catching the flu or pneumonia can be deadly and the experience of extreme fatigue can be overwhelming.
If you know someone with Lupus, be sympathetic. Be that ear that they need. Educate yourself.
My mission with #TheLupusGrindNeverStops campaign is to help raise awareness of Lupus, increase awareness to improve early diagnosis and present its impact on people living with Lupus. By increasing awareness, we can help de-stigmatize Lupus, enhance empathy for people living with this chronic illness and strengthen the Lupus community by showing those living with Lupus that they are not alone.
The campaign is mostly targeted towards young minority women, who are most impacted by Lupus. By raising awareness, diagnosis and treatment can be sought for those who are at an increased risk of being diagnosed and those who have symptoms. The campaign, as of right now, includes blog entries and social media activities.
Here we are!!! 2015 and I make my first post in June. I most definitely need to do better and learn how to make the most of the free time that I do have.
I’ve really started to concentrate more on Lupus Awareness and being more creative. I love creating and just making things! It’s a talent that I would love to share. I’m not a complete DIYer but I experiment a lot and do what I can. For Mothers Day, I made my Mother a spring wreath. And she loves it! What do you think?? Be honest.
I also refashion my clothes. I love it! The only reason that I haven’t posted them or started selling is because of my lack of space right now. That will be changing soon so watch out for that idea to flourish!
My new passion has drawn me to thrift stores and taken me away from the “department” store and malls. I really can’t tell you the last time I bought anything from a regular clothing store! I still want to learn how to use my sewing machine but again….my space situation has me stunted.
I know that I say this every time(lol) but I really mean it this time. I will start posting regularly and the posts will be very interesting.
The Exotic Gypsy