A poem by Me…for whomever…
A poem by Me…for whomever…
#TheLupusGrindNeverStops is a very important movement, not only to me but every Lupie in the world. Lupus is an invisible illness that can cause so much damage, not only to the Lupie but also family and friends. It’s an illness that I wouldn’t wish on my worst enemy. You never know when you will get sick. You never know what symptoms you will have. You never know how severe a flare can be.
For me, I think the worst part of this illness is that you can look “normal” but on the inside you feel like your body is falling apart. It feels like your body is betraying you and there is nothing you can do about it. The fear of catching something as simple as a cold is real. What takes the average person a couple of days to get over, can have a Lupie down for at least two weeks. Catching the flu or pneumonia can be deadly and the experience of extreme fatigue can be overwhelming.
If you know someone with Lupus, be sympathetic. Be that ear that they need. Educate yourself.
Here we are!!! 2015 and I make my first post in June. I most definitely need to do better and learn how to make the most of the free time that I do have.
I’ve really started to concentrate more on Lupus Awareness and being more creative. I love creating and just making things! It’s a talent that I would love to share. I’m not a complete DIYer but I experiment a lot and do what I can. For Mothers Day, I made my Mother a spring wreath. And she loves it! What do you think?? Be honest.
I also refashion my clothes. I love it! The only reason that I haven’t posted them or started selling is because of my lack of space right now. That will be changing soon so watch out for that idea to flourish!
My new passion has drawn me to thrift stores and taken me away from the “department” store and malls. I really can’t tell you the last time I bought anything from a regular clothing store! I still want to learn how to use my sewing machine but again….my space situation has me stunted.
I know that I say this every time(lol) but I really mean it this time. I will start posting regularly and the posts will be very interesting.
The Exotic Gypsy
It’s always a long time before I can come post but it is a personal goal to be able to post everyday. Thank God I have enough to keep me busy. I would LOVE ❤️ to be busier though (lol).
I have revamped my YouTube page a little and will start posting videos. I already have one that I posted yesterday. Short but sweet! I’m very, very excited about this as well as some other ventures that I am working on. I’m Lohnnie Cakes on YouTube! Subscribe. Subscribe! 😘
I already post like a mad woman on IG and FB. You are always welcomed to follow me! IG: LohnnieCakes FB: Lohnnie Cakes Follow me! I follow back!
Delon Company is another project that I’m working on. Building a brand here people! And I’m soooo very excited to just be a part of the movement. Customized shirts and snapbacks at a great deal! Beautiful quality. We also refashion! You will be hearing more about Delon Company real soon!
That’s all that I am willing to share for now (lol) but I have much more in store. Subscribe. Follow. All that good stuff!
😎The Cake Lady
My weekend wasn’t filled with excitement or my usual spur of the moment traveling but I’m good with that! I arrived back in South Carolina feeling like I missed so much. And realistically, I had. I hadn’t seen my son in about a month. I hadn’t seen my second son (my dog, Tyler) in about a month. And of course, I had to let my Mom know that I wasn’t missing any body parts lol.
My journey had taken me to Atlanta, Georgia; Dallas, Texas and Davenport, Iowa….then back to Texas. All in a month! But it was fun and I love traveling. For a short while, I wanted to start life over in Texas but that turned out to be not a good decision. I felt like being that far from home, I needed some type of support system and I didn’t see that as being possible. But I learned a lot and i feel like that trumps all of the BS involved.
Tonight has not been one of the best nights. I feel like I have so many decisions to make and no direction but that’s for another post at another time. Right now, my body and my health is my concern.
In all honesty, I find it a struggle to get out of the bed every morning. I wake up and lay in bed hoping that I can fall back to sleep but rarely does it happen. My body aches and it feels like every muscle in my body is moving or cramping. My mind is racing…thinking about all of the things that need to be done. My body has other plans. I lay there for an hour….drifting in and out. By the time I get up, I have forgotten about all the things that need to be done. Brain fog. I wonder around the house for 30 mins and then I start trying to get my mind right.
What needs to be done? Is my son okay? Did I feed Tyler? Sheba? What medicine do I need to take? Did I take my meds yesterday? Where is my pain medicine? Why am I hurting right there? Where did that bruise come from? Why can’t I remember?
I suffer from an ailment named Systemic Lupus Erythematosus. People who don’t know or don’t understand have a hard time believing but this thing is a life-changer! At age 15, finding out that this was my fate was an eye opener. Growing up I always looked different because of my eyes, hair texture and overall look. Lupus was one more way for me to different from everyone but I just wanted to fit in….be normal. But that wasn’t in the cards for me. My ninth grade year in high school was a disaster. I was sick just about all year but once I made it out….I learned how to control my stress.
Through the years, God has blessed me with my son-what a blessing! He has blessed me with life, breath and my health. Until a couple of years ago, I virtually had no health problems except for the occasional flare from stress but I conquered even that! Mastered my stress levels and lived life!
I have come to the conclusion that I want to share my story. I want to share my neighbors story who suffer from this ailment as well. I want to be a part of gaining awareness for this ailment that affects so many but understood by very few. I believe that this is a part of my purpose. I believe that by sharing my story, I will save someone’s life. Maybe even make people pay attention! We need a cure!
I would like to aid in gaining more awareness, maybe assist in adding a South Carolina chapter of the Lupus Foundation of America, write a book and just do whatever I can to further my cause. I can always use help, guidance and mentorship because I am always striving for growth. If you would like to help in any way, please leave a comment or email me at firstname.lastname@example.org.