Tag Archives: illness



My mission with #TheLupusGrindNeverStops campaign is to help raise awareness of Lupus, increase awareness to improve early diagnosis and present its impact on people living with Lupus. By increasing awareness, we can help de-stigmatize Lupus, enhance empathy for people living with this chronic illness and strengthen the Lupus community by showing those living with Lupus that they are not alone.
The campaign is mostly targeted towards young minority women, who are most impacted by Lupus. By raising awareness, diagnosis and treatment can be sought for those who are at an increased risk of being diagnosed and those who have symptoms. The campaign, as of right now, includes blog entries and social media activities.

Lohnnie Cakes


Lupus Awareness Month


It is the 30th day of May and Lupus Awareness month is almost over!! The month went by so fast! I must apologize for not sharing my entire story but I will make another post. There is no doubt in my mind that I have lived a blessed life and I will continue to view it that way.

I have known a few people in my life who lived with Lupus and looking at my life and theirs, there is no question about it. Sickness and death follows this ailment closely. From the very beginning it was apparent to me that life for me would be different.

It is definitely worth telling people and making others aware of this illness. My hope is that through my story they will see the light at the end of the tunnel. It is also worth me telling my story so that others do not go through the waiting that I went through in order to find out what I had. The embarrassment, crying and fear that I went through can be prevented. Awareness is the key!

If you have a family member, friend or even if it’s you that suffers from this ailment, know that you are not alone and there are people out there that you can talk to about anything. Love and take care of your body! Take comfort in knowing that life does not end until YOU write the ending.

~Lohnnie Cakes

P.S. If you need someone to talk to, email me at lohnniecakes@live.com. Thanks for reading and following me.

My Story

My story is a story of a preteen/teenager aching, suffering, learning, coping and surviving. My story starts when I was around 12-13 years old. I remember it above any other memory because it was the first time that I had ever been really sick and my parents couldn’t figure out what was wrong with me.

My father has been a Licensed Pharmacist for over 30 years and had read or seen just about everything. A very knowledgeable man that doesn’t mind learning and growth even at 66. My mysterious illness came from out of nowhere and lasted the entire summer. He didn’t know what to think.

That summer was spent either in bed or in the bathroom. I slept and vomited the entire summer. I never went to the doctor that summer because just how it suddenly appeared, it suddenly disappeared! The school year started and there were no problems. I went through the seventh and eighth grade with no problems or feeling sick. At least not like the symptoms I dealt with that summer.

I was at that stage where I was becoming a young woman and dealing with the issues that young women go through. It was especially hard for me. I had to stay home every month on the day that my cycle started. I was always in so much pain. I could never keep anything down that day and I was miserable.

The summer of 1995 came and I was super excited and super nervous. I would be going to the 9th grade. Wow!! I didn’t know what to do with myself! I was entering high school and I was worried that people wouldn’t like me and that I would have the same problems I had in middle school.

I had been blessed with this curly hair and it got on my nerves! It never held a style. It did what it wanted. It is thin and curly. Today, even though I call it a blessing, I also can call it a curse. The least bit of moisture would kill a style and have me out of $60. Needless to say the females in the town I lived didn’t like me and a lot of it had to do with my hair, my complexion and me looking “exotic”.

The summer of 1995 was a repeat of that summer before middle school. I was in pain all summer, vomiting and sleeping. This time I developed lesions that left scars when they healed. I had never had scars on my face and I was mortified! I cried. Once school started, my illness didn’t just disappear. My arms and legs started hurting to the point where it was hard to walk. Climbing the steps at school was a task in itself and required so much energy that I used to sleep during my Algebra class. Thank God that I had an understanding teacher! By this time my mom had gotten enough of not knowing what was going on with me. She made an appointment with a Dermatologist.

The Dermatologist took one look at me, asked a couple of questions and told me that she wasn’t 100% sure but she believed that I had Lupus. She explained the illness to my mother and I and told us that she would refer me to one of the best hospitals in South Carolina.

This was the beginning of my sixteen year journey to becoming who and what I am today.

~Lohnnie Cakes

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