Tag Archives: SLE

#TheLupusGrindNeverStops

  

My mission with #TheLupusGrindNeverStops campaign is to help raise awareness of Lupus, increase awareness to improve early diagnosis and present its impact on people living with Lupus. By increasing awareness, we can help de-stigmatize Lupus, enhance empathy for people living with this chronic illness and strengthen the Lupus community by showing those living with Lupus that they are not alone.
The campaign is mostly targeted towards young minority women, who are most impacted by Lupus. By raising awareness, diagnosis and treatment can be sought for those who are at an increased risk of being diagnosed and those who have symptoms. The campaign, as of right now, includes blog entries and social media activities.

Lohnnie Cakes

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2015…

Hello!!!

Here we are!!! 2015 and I make my first post in June. I most definitely need to do better and learn how to make the most of the free time that I do have. 

I’ve really started to concentrate more on Lupus Awareness and being more creative. I love creating and just making things! It’s a talent that I would love to share. I’m not a complete DIYer but I experiment a lot and do what I can. For Mothers Day, I made my Mother a spring wreath.  And she loves it! What do you think?? Be honest.

  
I also refashion my clothes. I love it! The only reason that I haven’t posted them or started selling is because of my lack of space right now. That will be changing soon so watch out for that idea to flourish! 

My new passion has drawn me to thrift stores and taken me away from the “department” store and malls. I really can’t tell you the last time I bought anything from a regular clothing store! I still want to learn how to use my sewing machine but again….my space situation has me stunted. 

I know that I say this every time(lol) but I really mean it this time. I will start posting regularly and the posts will be very interesting. 

The Exotic Gypsy


Awake…

Tonight has not been one of the best nights. I feel like I have so many decisions to make and no direction but that’s for another post at another time. Right now, my body and my health is my concern.

In all honesty, I find it a struggle to get out of the bed every morning. I wake up and lay in bed hoping that I can fall back to sleep but rarely does it happen. My body aches and it feels like every muscle in my body is moving or cramping. My mind is racing…thinking about all of the things that need to be done. My body has other plans. I lay there for an hour….drifting in and out. By the time I get up, I have forgotten about all the things that need to be done. Brain fog. I wonder around the house for 30 mins and then I start trying to get my mind right.

What needs to be done? Is my son okay? Did I feed Tyler? Sheba? What medicine do I need to take? Did I take my meds yesterday? Where is my pain medicine? Why am I hurting right there? Where did that bruise come from? Why can’t I remember?

I suffer from an ailment named Systemic Lupus Erythematosus. People who don’t know or don’t understand have a hard time believing but this thing is a life-changer! At age 15, finding out that this was my fate was an eye opener. Growing up I always looked different because of my eyes, hair texture and overall look. Lupus was one more way for me to different from everyone but I just wanted to fit in….be normal. But that wasn’t in the cards for me. My ninth grade year in high school was a disaster. I was sick just about all year but once I made it out….I learned how to control my stress.

Through the years, God has blessed me with my son-what a blessing! He has blessed me with life, breath and my health. Until a couple of years ago, I virtually had no health problems except for the occasional flare from stress but I conquered even that! Mastered my stress levels and lived life!

I have come to the conclusion that I want to share my story. I want to share my neighbors story who suffer from this ailment as well. I want to be a part of gaining awareness for this ailment that affects so many but understood by very few. I believe that this is a part of my purpose. I believe that by sharing my story, I will save someone’s life. Maybe even make people pay attention! We need a cure!

I would like to aid in gaining more awareness, maybe assist in adding a South Carolina chapter of the Lupus Foundation of America, write a book and just do whatever I can to further my cause. I can always use help, guidance and mentorship because I am always striving for growth. If you would like to help in any way, please leave a comment or email me at lohnniecakes@live.com.

Lohnnie Cakes


Hello again!! New endeavors are on the horizon!

OMG….I really need to be ashamed of myself. I have not posted anything for almost a year but I have been so busy! I have taken up so many different projects and totally put my blog on the back burner but I’m back!! 

One of the projects that I have taken up is making my own wigs and becoming more familiar with weave and just hair in general. I have also been considering becoming a hair distributor as well as going to Cosmetology school but lets not jump too far ahead. I have been researching a lot and I am just super excited about this venture. 

I have also been thinking about making my own video to show how I make my wigs. So please make sure you watch out for that! The wigs that I have been making are pretty simple and I have only been using glue to secure the tracks; however, I am about to delve into making sew ins because they last longer and you don’t have to worry about the glue.

This Bob hair style is my current hair style and I just love the different ways that I can curl and manipulate this hair. The hair is from Sensationnel and it’s in their Bump collection. It’s 100% human hair and it has a great texture. I have had this style for about a week and I have had very little problems with shedding and I haven’t noticed any tangles. The hair was $19.99 and can be styled in different ways. I found this hair in Beautyline, which is a beauty supply store in Columbia, South Carolina. Unfortunately, I have not been able to find this hair at my local beauty supply store.
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The hair is about 8 inches and has a natural bump to it already. Even when you cut the hair it still has a little curl to it at the ends. In my next post, I will give a little more detail about how I installed the wefts, cut and styled. I cut the hair into a slight asymmetrical Bob and I believe that by doing this I added a little more versatility to the style. 

Normally, I am able to stick with a style for about 2 weeks before I become bored or just tired of something sitting on top of my head (lol). I tend to sweat a lot in my hair so learning how to perform a sew in would allow me to remove the wig whenever I feel like it. I have not tried just gluing the tracks using my mannequins head but I much would rather sew the wefts onto the wig cap than to glue them. Image

If you are a hair diva, you may want to stay tuned!! Also, watch out for my tutorial video to see how I installed this hair. I may also do a post in my blog to show the different steps.

Another project that I have been working on is something that is near and dear to my heart. If you have been following me somewhat, you may already know that I have Lupus. I have registered to be apart of a Walk to End Lupus fundraiser. On April 28, 2013, I will be participating a walk in Charlotte, North Carolina and I also so excited! Currently, we are only about 40% of our goal of $125,000 and we have ten days left. 

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If you would like to join me in the walk or even to donate, please click the banner and follow the directions to register or donate today. This is definitely a worthy cause! My team is called Purple Ribbonz. Hopefully, in the near future you will see this name everywhere and not just being associated with Lupus awareness. In the near future, I hope to have my business up and running. Visit my team page to find out more information. Click here to go to my team page.

Kisses!

Lohnnie Cakes


My Story Part II

I was told that the Medical University of South Carolina was (and is) one of the best hospitals in South Carolina. They have some of the best doctors working and teaching. The hospital has all kinds of doctors scattered throughout the hospital and in the clinics throughout Charleston. It’s the hospital that you want to be associated with if you have an illness.

My first year after being diagnosed was horrible. I was poked so many times that now I am used to needle pricks. I went through a spinal tap, MRI, and X-rays, just to name a couple. My life as a 15-16 year old was far from normal at first. My first two years in high school were the hardest but eventually life became easier.

I had the occasional upset as far as getting sick but nothing that I would call major. I used to feel like people were staring at me, at my face, my aching body and the funny way I walked. I tried so hard to walk normally but I was just in so much pain. It felt like my body was betraying me.

I graduated from high school and enrolled in college. I started dating a guy that I later married and we had a child. Being pregnant was one of the most scariest times in my life. My doctors tried so hard to talk to me about the complications and problems that could arise but I didn’t want to hear it. I wanted my baby. I was only 19 years old.

I was not quite the perfect patient during my pregnancy. I missed many appointments and paid for it in the end. When I finally went back I had to get a stress test done and some other tests. During the stress test I became light headed and dizzy. The nurse told me to sit up and see if it was better…..it got worse! She told me to go in the restroom and give them a urine sample. They examined it and told me almost immediately that my babies life and my life was in danger. He had to be delivered soon. Real soon.

I was admitted on a Monday to the hospital and put into a room. Hooked up to IVs and monitors…..I was scared! My son was born on Thursday, October 26, 2000. Christopher Germaine Harrison, Jr. was the most beautiful baby and weighed 4 lbs. 13 oz. He was born five and a half weeks early and having problems breathing. I was confined to the bed for 24 hours and unable to see him that first night. I felt horrible…..what had I bought my child into? I had wonderful nurses and they definitely took care of me but I wanted my son. My nurse took pity on me and bought me a picture of him. I was so grateful, I still have that picture to this day and he’s 11 years old.

By Saturday, I wasn’t able to stay in the hospital anymore but my son was unable to come home yet. They still hadn’t fed him yet and he was cranky lol. I cried all the way home and when I got home, locked myself in the bathroom and cried all afternoon. Being home without my baby was never what I wanted and drained me.

~Lohnnie Cakes


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